Another Thursday, Another appointment day.

Another Thursday brings another appointment day.

Today I met with the dietician for the first time in about 6 months I've met her on one occasion this time she's 'part of the team'. I really don't like new people but today was okay. I mostly am not fond of dieticians for the sheer fact I hate openly talking about how little or worse how much I'm eating. But she was quite and didn't even ask me to delve into this topic. Instead when my parents had 'alone time' they told her. Gold star for me I am having my night time feeds decreased because I'm eating one small family meal and one bowl of soup. However apparently the 'goal for the week is to incorporate breakfast' I NEVER AGREED TO THIS DO THEY JUST COMPLETELY MISUNDERSTAND HOW HARD THIS IS FOR ME BECAUSE I SIMPLY DON'T WANT TO BE A PAIN IN THE ASS AND VOCALISE IT!?!?

My GP appointment was what some would call successful I dodged a bullet again today and am staying out of hospital despite my postural drop again and my quite drastic heart rate increase. She seemed a little worried but simply pleaded with me to drink more. Which I nicely, declined.

I got the conditions to my CTO too which are as follows;
-"Keep up with GP and EDS appointments as directed by the team"
-"Make attempts to eat an oral meal plan moving towards the removal of the Nasogastric Tube"
-"If you pull out or tamper with the Nasogastric Tube and need it reinserted you are to attend to A&E and have it re-sited with the support of family"
All of this to avoid a Swanston Centre admission.

I'm finding today particularly hard for no particular reason so I'm about to dose up on seroquel before I pass out

Xx Keep fighting Bec xX

UPDATE: I spoke to my mum and apparently I don't have to eat breakfast...just yet. But to get rid of the tube I have to be eating 3 meals and 2 snacks and I'm nowhere near this! its left me disheartened but at least I know where I stand...